I love pilates at this place because it's intense and yet gentle at the same time. It's hard and yet it's all about listening to your body and loving it. The instructor corrects me dozens of times and yet she's understanding and caring. Which is all very important because, again, I had to be corrected dozens of times in one hour. I'm more about yoga than pilates. But today was a good class because I left feeling strong. It's important to work your muscles so much that you feel strong every now and then!
Then by the time I got up by work again, it was 11am. That's early enough for lunch! sweet. So I went to Panera because they have free wifi and then I can check my email during lunch and get stuff done. I got a really good meal and enjoyed it. Ahhhh....
Then off to work but home early so I could get medicine and vitamins and a chicken for my sickies at home!
best moment of the day: C. went down for her nap while my MIL was still here watching the kids. But I was home when she woke up and I went to get her. I love the happiness on her face when I respond to her cries and get her after her nap. But when it's mixed with surprise and slow recognition, the happiness is even cuter. Such a precious babe!
worst moment of the day: Jeremiah came home early from work sick. I think the girls and I have a touch of a stomach bug too (or maybe it's a remnant from yesterday's terrible restaurant experience). He pitched in as much as he could this evening and I got away with a shower and some blogging time by putting them all on the couch with a bowl of popcorn and a movie. Still, he feels awful and I hope we're not all in for a bout of something yucky.
thoughts of the day: thalassaemia
Our pediatrician called me today and told me that C.'s blood test results came back and it looks like she has thalassaemia minor. This is a genetic thing where her blood will always have lower levels of iron than the rest of us, no matter how much iron she consumes.
A major case would be life changing but she has a minor case. He said there's no reason she couldn't be an olympic athlete and that there's nothing that we need to do special for her. Just have her take a daily vitamin supplement that includes iron and give her at least one meat meal per day. I think this is so that she doesn't get a deficiency, not that we could ever raise her natural levels. The vitamin's no problem. The meat will actually be a major impact on us, but we can do that. (C. and meat is another story.)
It's called a disorder. It's called a disease. I don't like either of those since they imply that something is wrong and needs to be fixed. Could we call it a condition? My doctor is a bit laid-back, which I like, but it also means that I'm left with a lot of information holes to fill with my google degree.
But right now I'm a bit too sad to delve into it. I don't want to read that there's something wrong with her. I don't want to see that she might have problems or that there's nothing that I can do about it. I'm not sure if these things are true, I just haven't really wanted to face it.
I know that this isn't really bad news. I've had friends who have received bad news about their kid's health and I know it's devastating. I've also worked with special needs kids for 7 years and I know that's really hard on their families. So comparatively, this is not bad news.
But still. It's my little girl. And I don't want there ever to be anything wrong with her. Especially something unsolvable. I'm sad.
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ReplyDeleteLove you Jess. It sounds like a scary time. My heart goes out to you and the family. Many hugs and warm thoughts.
ReplyDeleteHey Jess. I'm sure that is very upsetting. So sorry you have to deal with this. And I don't want to minimize things, but I did some digging (because I am semi-obsessed with medical situations that I know nothing about), and the variant that C has is not the bad kind, and seems very manageable. I can always jump on MedLine and do some lit searches for you if you want. I love doing that stuff.....
ReplyDeleteSounds like you are in good hands with your doctor and that you are getting sound advice. I guess the biggest change is having meat at the dinner table when you've dedicated yourselves to being vegetarian. I hope you are able to find a good local butcher who can provide you guys with safe meat products.
Much love to you all!!!
I know how you feel. You are aware and that is a good thing. She will continue to grow healthy and strong. All I want to do is give you a huge hug. Nothing that comes to mind encompasses what I want to say. So love you, love you, love you.
ReplyDeleteHey, so I just asked Herb about his (you know, gotta get a little mileage out of that degree) and as it turns out, he has the same thing. Now, the fact that I didn't even know that he had this is proof that it has had zero effect on his life. I hope that's somewhat comforting :) I love you and your C.
ReplyDeleteOh Jess, please don't worry. I was about to put this big explaination about thal trait and why you don't have to worry about it but I realize you probably don't want to read about it. But if at some point you want to give me a call okay? Love to you and the girls (and Jere too) -Lisa
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